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Bone-marrow transplant teenager: ‘I feel angry that my community let me down’

Oct 21

A teenager denied a life-saving transplant speaks out against the chronic shortage of ethnic minority volunteers
Like most teenage girls, Aneesa Hussain harboured hopes and aspirations for her future. After school she would spend a gap year travelling in Japan. She would graduate from university and embark on a career in marketing. But two years ago, at 17 years old, Aneesa was diagnosed with aplastic anaemia – a rare and potentially fatal disease of the bone marrow – and her plans were put in jeopardy.

Her only hope of survival was a bone marrow transplant. But despite a 10-month search that extended worldwide, not a single suitable match materialised, because Aneesa is of Pakistani origin and there is a chronic shortage of donors from this and other ethnic minorities.

See the rest of this article in The Daily Telegraph.

Supplement from Journal of Renal Care focuses on ethnic and cultural challenges of providing care for people with kidney disease

Sep 8

The Journal of Renal Care has released a free supplement focusing on the ethnic and cultural challenges of providing care for people with kidney disease.  There are articles looking at a number of issues, including Kidney Research UK’s Peer Educator Model.