Project 3: African Caribbean Leukaemia Trust

Black Lives Do Matter: Changing attitudes about Living Organ Donation within the Black Community

LTI Project 3: African Caribbean Leukaemia Trust (ACLT)

This project is targeted mainly at the African and African Caribbean communities in South London boroughs of Lambeth, Lewisham and Croydon. ACLT is a long established charity which has been involved in promoting organ donation within the Black communities in the UK. The project will involve ACLT mentors and volunteers, including living donors and recipients from the community who will develop an outreach programme to increase the number of living kidney transplants. The outreach programme will be delivered at a wide range of cultural, social, religious and artistic events as well as events during Black History Month. Those interested in living donation will be identified and face to face meeting will be arranged with them; these will be followed up by follow up discussions with the patients and their family members. Appropriate resources such as leaflets, posters as well as a video targeted at the African and African Caribbean community will be developed and used extensively. Potential living donors will be supported as they go through the living donor assessment process.

Project lead: Orin Lewis

 Orin (web) Orin Lewis OBE is the co-founder (alongside his wife Beverley De-Gale, OBE) and CEO of the leading UK Leukaemia charity, the ACLT (African Caribbean Leukaemia Trust). The ACLT was founded in June 1996, after Orin and Beverley received the devastating news that their 8 year old son Daniel De-Gale needed a lifesaving bone marrow (stem cell) transplant in order to win his 3 year battle against leukaemia.
Orin channelled the anxiety of discovering his Step-son had a form of cancer into the goal of creating a better future for people suffering with leukaemia and other blood-related disorders. To achieve this, the charity continually raises awareness to enable potential donors to come forward at the ACLT registration drives, thus directly enhancing the process of offering hope and a healthy future to someone whose disorder may otherwise prove fatal. To date ACLT charity has (on a cumulative basis) increased the bone marrow (stem cell) register from 550 to over 80,000 and found over 80 lifesaving donors. ACLT also raises awareness about blood and organ donation.