|Dr Adnan Sharif graduated from the University of Edinburgh in 2002 and underwent his medical and nephrology training in Cardiff and Birmingham respectively, while also achieving his research MD in the field of post-transplantation diabetes. He took up his Consultant Nephrologist post at the Queen Elizabeth Hospital Birmingham in 2011, with a special interest in renal transplantation. He is the secretary of the non-Government Organization Doctors Against Forced Organ Harvesting (DAFOH) which campaigns against illegal and unethical organ procurement around the globe and has been nominated for the 2016 Nobel Peace Prize. He also sits on the steering committee for Give A Kidney, a registered charity that promotes non-directed altruistic kidney donation. Finally, he is a member of the National BAME Transplantation Alliance that seeks to promote blood, stem cell and organ donation from minority ethnic groups in the UK.|
|Kirit Modi is a kidney patient who has been most fortunate in receiving a second kidney transplant in 2016. He has been supporting kidney patients for many years and campaigns to improve provision throughout the UK. He is active within the National Kidney Federation (NKF), has been its Chairman and now has a honorary position with the charity. He is a founding member of NBTA, has been its Co-chair and now is its Honorary President. Kirit has represented patients on many national groups, including the BRS and the Renal Research Strategy Group and spoken in the House of Commons on issues affecting kidney patients. He has considerable experience of working with BAME community groups, particularly among the Hindu and Jain communities.|
|Orin Lewis OBE is the co-founder (alongside his wife Beverley De-Gale, OBE) and CEO of the leading UK Leukaemia charity, the ACLT (African Caribbean Leukaemia Trust). The ACLT was founded in June 1996, after Orin and Beverley received the devastating news that their 8 year old son Daniel De-Gale needed a lifesaving bone marrow (stem cell) transplant in order to win his 3 year battle against leukaemia.Orin channelled the anxiety of discovering his Step-son had a form of cancer into the goal of creating a better future for people suffering with leukaemia and other blood-related disorders. To achieve this, the charity continually raises awareness to enable potential donors to come forward at the ACLT registration drives, thus directly enhancing the process of offering hope and a healthy future to someone whose disorder may otherwise prove fatal. To date ACLT charity has (on a cumulative basis) increased the bone marrow (stem cell) register from 550 to over 80,000 and found over 80 lifesaving donors. ACLT also raises awareness about blood and organ donation.|
|Tracey is currently the Senior Policy and Practice Officer with the Race Equality Foundation. She has undertaken research within the social care field, primarily on disability issues, and is co-author of several reports, including Between ambition and achievement: The views of young black disabled people on independent living and Something to do. Other research has explored the implementation of family group conferences and the career development of senior black managers in social services.She is currently working on the Engage London project which provides a range of activities to support sustainability in the children, young people and families sector. In addition, she is working on a Department of Health funded programme to assist clinical commissioning groups in the commissioning of communication services for seldom heard and marginalised groups.
Tracey is also currently a member of the Risks, Trusts and Relationships, the Neighbourhood Approaches to Loneliness advisory group, National BAME Transplant Association (NBTA) , and National Institute for Health Research Satisfaction with Social Care Services amongst BME populations.
|Angela Ditchfield is a Specialist Nurse Organ Donation and has worked for NHS Blood & Transplant for 5 years. Prior to this Angela was a sister on an Intensive Care Unit she is now based in Blackburn Lancashire. Angela is keen on raising the profile of Organ Donation within BAME communities and she won the Mary Seacole Leadership award for work she has done raising awareness of donation within the Pakistani community. Angela undertook a research project as part of the award and produced two videos, one involving the younger Pakistani community and one filmed in Urdu. The videos have been used to promote organ donation and have been show on national television. Angela has presented her research findings at international conferences and has also visited the United States of America to share practice and learn about the barriers other countries encounter. Angela is currently undertaking her Doctorate at the university of Salford and is exploring issues of consent within the BAME communities.|
|Working in the renal department for last 16 years gave me great insight to the needs and cares of this cohort of patients. Robust research evidence suggests that, transplantation is the best treatment option for renal failure patients. Unfortunately, patients from the South Asian community are disadvantaged when it comes to this ideal option due to the scarcity of organ donors from the same community. My clinical experience and challenges faced at the clinical area; while striving to provide the best quality care for my organ failed patients secondary to scarcity of Asian organ donors, prompted me to lead a project to explore the effectiveness of pilot interventions to increase the number of registered organ donors and deceased organ retrieval within the South Asian community and completed a PhD on the same topic. I truly hope and pray to save as many lives as possible by spreading the “Gift of Life” message.|
|Kirit is the Co-Chair National Black, Asian and Minority Ethnic Alliance (NBTA), Co- Chair of East Midlands Academic Health Science Network Patients Public Involvement Senate, Chair / Founder of Leicestershire South Asian Diabetes Support Group, Community Ambassador for The Patients Association, Community Champion for Kidney Research UK and Trustee for Voice 4 Change England and NHSBME Network.
He has significant paid and voluntary sector experience both as a patient and community activist in research, community engagement and health services having worked across the East Midlands, Nationally and Internationally. He has particular experience and passion in delivery of equality and diversity particularly in Black and Minority Ethnic communities. Kirit has worked as Executive Director for a Race Equality Council, Race Equality in Mental Health Regional Officer, BME Health and Social Care Partnership Officer, National Development Officer for the Federation of Black and Asian Drugs and Alcohol Professionals, National Development Officer for Drug Scope. His current freelance roles are to promote Organ, Blood and Stem Cell awareness with BAME, Faith and Diverse Communities within the Midlands, Patients Public Involvement, Patient Leadership, Community Engagement and Capacity Building.
|I am a registered general nurse and have worked within renal medicine for almost 20yrs; the last 10yrs have been spent leading and developing our transplant service. Prior to this I have worked in the haemodialysis unit [Lister], nephrology ward, home therapies and with the Liaison team [pre dialysis/conservative management] finally ending up in transplant, an area I am very passionate about.
Current key responsibilities include managing transplantation in a non-transplanting centre; focus on multi-professional team working within our department, integrated team working with other departments both internal and external to the Trust and education of patients, donors and healthcare professionals involved in our patient pathways. This has been with the aim of enhancing our patients’ experience and health outcomes through timely listing for transplantation with a focus on living donation.
|Karen Quinn joined the NHS over fifteen years ago after working in the voluntary sector and Social Services. She has held several senior management positions in primary and secondary care, both from a commissioning and provider perspective. Before joining NHSBT in 2009 as Assistant Director, UK Commissioning, she worked in Papworth and Addenbrooke’s Transplant Units as Directorate Manager.
Since joining NHSBT, she has set up the National Organ Retrieval Service (NORS), part of the ODTF Recommendations, which has supported the increase in organ donation. She and her team have also implemented the recommendations of the NORS Review , commission retrieval teams across the UK and the services to support them, such as transport and consumables.
|Dr Sunil Kumar Daga graduated from MS University of Vadodara, Gujarat (India) in 2002 and pursued post-graduate training at Leicester, Nottingham and Coventry, UK. He undertook research in kidney transplantation and was awarded PhD by University of Warwick in 2015. Subsequently, he has worked as Consultant Nephrologist at University Hospital, Coventry up until December 2016. Currently he is a Consultant Nephrologist and Renal Transplant Physician at St. James’s University Hospital at Leeds. He has clinical and research interests in risk stratification of immunological high risk potential kidney recipients and also improving organ donation (particularly in South Asian communities). Towards this, he has worked actively with community ambassador team in east Midlands and currently working on a collaborative project on organ donation with University of Warwick. He is a member of National BAME Transplant Alliance that seeks to improve organ and tissue donation in BAME community in the UK.|