The coordinating voice for Black, Asian, Mixed Race and Minority Ethnic transplant donation

In May 2020 the law around organ donation in England changed meaning all adults in England are now considered to have agreed to be an organ donor when they die, unless they have recorded a decision not to donate or are in one of the excluded groups.

Krupesh Hirani, a member of the London Assembly Health Committee, is hosting an event at City Hall along with the charities National Kidney Federation (NKF), the National Black, Asian, Mixed Race, and Minority Ethnic (BAME) Transplant Alliance (NBTA), and the Jain and Hindu Organ Donation Alliance (JHOD) to mark the third anniversary of the organ donation law change in England on Friday 19th May 2023, 09:30 – 12:55 with an Organ Donation Summit event. Taking place at the new City Hall, London, the event will be making its first debut as a face-to-face event.

The event will mark the anniversary of when the law changed in England with a panel of guest speakers and will include the latest statistics on organ donation and transplantation, as well as how community action to address inequalities can still be progressed. The Organ Utilisation Report will also be discussed which highlights the views of members and observers of the Organ Utilisation Group Organ and what they think are key barriers, successes and the priorities of organ transplantation and the utilisation of organs from deceased and living donors.

Orin Lewis, Co-Founder & Chief Executive of ACLT and Chair of NBTA (National Black, Asian, Mixed Race and Minority Ethnic Transplant Alliance) commented; “The NBTA acknowledges the third anniversary of the pivotal Organ law change in England, and the potential increase in life saving donations to those individuals needing the gift of life. However, we also appreciate that there is still much more awareness work that needs to be undertaken by community and stakeholder organisations to positively change cultural/religious attitudes and behaviour to increase more chances of well-matched utilisation that leads to donations. Therefore, this summit enables a timely opportunity to review and evaluate the present day statistics and organ provisions with a view to debating the lessons learned over the last three years.”

Kirit Modi, MBE, Chair of JHOD said; “The third anniversary of the change in law to opt out in England provides a timely opportunity to consider the impact of the change on organ donation. The pandemic has had a significant effect on organ donation, and we face a huge challenge in meeting the aspirations of the change in law. This Summit will highlight how ethnic minority community groups, local authorities and staff working in the NHS can work in partnership to address these challenges.”

Andrea Brown, Chief Executive of National Kidney Federation said; “We very much look forward to the Organ Donation Summit event. This is an important milestone, the third anniversary where the law around organ donation in England has changed for the better. Saving more lives than ever before. The National Kidney Federation are pleased to support the event and look forward to pushing for further improvements.”

Krupesh Hirani, a member of the London Assembly Health Committee added; “I’m delighted to be hosting this Organ Donation Summit at City Hall. The change of law in England was a welcome step forward but more can be done to improve outcomes for transplant patients, particularly those from Black, Asian and Minority Ethnic communities. This event is a great opportunity to bring together key stakeholders to reflect on the past three years and explore how we can tackle issues going forward.”

To re-visit last year’s Organ Donation Summit event which took place online, please visit:


Sharney Warren, telephone number 01909 495 808
Joshua Armstrong

Notes to Editors:
About the National Black, Asian, Mixed Race, and Minority, Ethnic (BAME) Transplant Alliance (NBTA)
The National Black, Asian, Mixed Race, and Minority Ethnic (BAME) Transplant Alliance (NBTA) is a coalition of organisations which seeks to promote awareness of organ, blood and stem cell donation amongst BAME people and to increase the number of donors from these communities. We aim to promote effective and efficient partnership working between members, encouraging a coordination of initiatives that make the most of skills, experience and infrastructure already available. To find out more visit

About The National Kidney Federation
The National Kidney Federation is a national charity that provides support and information to patients, families, and healthcare professionals affected by kidney disease. Our aim is to improve the quality of life and support for kidney patients and their families and raise awareness about kidney disease. Our patient support services include a free to call Helpline, an array of patient information leaflets, and home dialysis peer support. We also work closely with healthcare professionals and lobby to government to improve kidney care for over 68,000 kidney patients suffering end-stage renal failure, and the estimated 3.5 million people identified as having chronic kidney disease (CKD) in the UK. To find out more visit or call 01909 544999.

About the Jain and Hindu Organ Donation Alliance (JHOD)
Before its charitable registration, the Alliance was known as the Jain and Hindu Organ Donation Steering Group which was established following a meeting in Parliament organised by Lord Jitesh Gadhia and Kirit Modi in July 2019. The Alliance has established a national reputation for leading on organ donation in communities and is regularly approached by NHS Blood & Transplant and others to work with them. The work is now extending to promote blood and stem cell donation to help those in need of these as well. To find out more visit